Thursday, May 22, 2008
Well, I went to my new neurologist and it was an eyeopener. My doctor says that he's not happy with my history of treatment at all. He confirmed something I've wondered for years. It seemed that when they upped and lowered my dosage of Celexa, it didn't have much correlation with improvement of my condition. And additionally, I didn't have any change in medication and my condition would decrease and then get better. Turns out, Celexa isn't a migraine treatment. Some antidepressants are, but not Celexa. I seriously don't know what the hell. I really liked and trusted the doctor who first put me on it, and no doctor since has said "hey, wait, what?" So really the only treatment I've had has been the Maxalt. The Topomax and Zonegran I was on were too low dosage to help.In other words, in 4 years of going to neurologists, I've not really been treated.So I'm going back on Topomax. He says that the tingling in the hands and feet will go away after time, I just have to stick it out. We're going to increase my dosage to an acceptable level, and he says he thinks he could get me to a once a month occurance and I could go back to work and a normal life.He wants to do a 24 hour EEG, which should be interesting. I'll be wired up and sent home. He wants to rule out seizure activity. I'm not leaving the house looking that way. Of course, I'll look really cyberpunk for a day.
Thursday, May 8, 2008
This new medication, Zonegram, seems to be giving me a low grade headache since I started. I know I also have an abcessed tooth, so I'm wondering how much it feeds into it, but the headache is the whole head, feel-it-in-my-fingers type.
I had an all out episode yesterday, I'm not sure how long it lasted, but it was early afternoon, then it was late evening, so it had to be a doozy. I need to talk to Brian when he gets home to get the low down. This morning, I had the high res vision I get afterwards, where everything seems too bright, too detailed. Like looking at my living room will overwhelm my sense of vision. I can only describe it like the scene where Dorothy opens the door to Oz. I always feel like I should harness it somehow, make things while I feel like I can see this detail, but Iend up playing online games to block out as much outside stimulus.
I had an all out episode yesterday, I'm not sure how long it lasted, but it was early afternoon, then it was late evening, so it had to be a doozy. I need to talk to Brian when he gets home to get the low down. This morning, I had the high res vision I get afterwards, where everything seems too bright, too detailed. Like looking at my living room will overwhelm my sense of vision. I can only describe it like the scene where Dorothy opens the door to Oz. I always feel like I should harness it somehow, make things while I feel like I can see this detail, but Iend up playing online games to block out as much outside stimulus.
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